We are excited about a series of summer events to raise awareness and funds to combat FSHD (facioscapulohumeral muscular dystrophy), a rare genetic disorder that weakens skeletal muscles, impacting mobility and independence. While there’s currently no cure, clinical trials are bringing new hope.
This year June 20 marks FSHD World Day, celebrated globally with the color orange. Locally, residents can pick up a free “Fido Fights FSHD” orange dog bandana at local businesses, including:
- American Garage Floor
- Avalon Salon & Spa
- Barrington Bank & Trust
- Timothy Grant Jewelry
- Hawthorn Woods Community Bank
- Hollis Brothers
- Mark Hornok–Edward Jones
- Mr. Tux
- Reflections in Glass
- Volle’s Bridle Shop
Supporters are encouraged to post pictures of their pups in orange on social media using the hashtags #joanneswarriors, #curefshd and #worldfshdday.
The FSHD Society, lead by a 1957 Chevy Bel Air, will march in the Barrington July 4th Parade. Volunteers and pups in “Fido Fights FSHD” bandanas will hand out wristbands and dog bandanas to raise awareness and promote the Chicagoland Chapter Walk to be held September 13 at Barrington's Citizens Park.
In 2024 Barrington hosted the top FSHD Walk, and we want to keep that momentum going. Local participation turns awareness into action, so spread the word, donate, and stand with those affected by FSHD.
About the Author: After a long medical journey to pin down exactly what was ailing her Joanne Dalessandro of North Barrington learned that she had FSHD. Since then she has been actively raising awareness and money to find a cure. For more information visit FSHDSociety.org or contact Joanne Dalessandro (joanne@fshd-cure.org or 847-502-7794).