Endometriosis is a chronic and often misunderstood condition that affects millions of people worldwide. It occurs when tissue similar to the lining of the uterus grows outside the uterus, most commonly in the pelvic area. It can also affect other organs, including the bowels, bladder and even the lungs. This misplaced tissue can cause significant pain, gastrointestinal distress, frequent or urgent urination, decreased sexual wellness, bloating and heavy or irregular periods, among other complications.
Although endometriosis affects an estimated 1 in 10 women globally, it frequently goes undiagnosed or misdiagnosed for years. Many people first experience symptoms in their teens or early adulthood but are not formally diagnosed until their 20s or 30s. While treatments such as medication, surgery or a combination of both can help manage symptoms, there is currently no cure.
Delayed diagnoses and limited treatment options mean many people endure years of pain, which can significantly affect quality of life.
“I first heard about endometriosis when I was barely a teenager,” says Pam Flores, an Asbury Park resident and musician. “From my very first period, I experienced intense pain and [decreased sexual health]. At 13, I was put on birth control to try to help manage the symptoms, but unfortunately it didn’t do much. For years, I was simply told to take painkillers to deal with the pain. I wasn’t officially diagnosed until about three years ago when I had laparoscopic surgery.”
Endometriosis is widely considered one of the most painful gynecological conditions, yet treatment often focuses primarily on managing symptoms rather than stopping the disease entirely.
“I kept being told there is no cure, that not much can be done and that having endometriosis is very common,” Flores shares. “I drink the teas, use heating pads and take the painkillers, but I’m still in pain for about two weeks of every month.”
The tea Flores refers to is raspberry leaf tea. Some people also turn to chamomile, peppermint or ginger tea, which some say can provide comfort during high-pain days.
Despite the daily challenges of living with endometriosis, Flores tries to maintain a positive outlook and find small moments of relief when possible.
“Endometriosis is one of those chronic health issues where you really have no idea someone has it,” Flores explains. “People around me often don’t know whether I’m in pain, and I hide it well because I have no choice. Most of us don’t. If I can stand, that’s a huge accomplishment. If I’m in pain for only one week, I consider that a win. I take the wins where I can.”
She adds that connecting with others who understand the condition has helped her cope.
“I talk with friends who can relate, try to inform loved ones who are curious and, most importantly, continue to advocate for myself, even when it’s exhausting.”
If you are experiencing pelvic or abdominal pain and suspect you may have endometriosis, reach out to a doctor. Plan ahead for your appointment, ask questions and advocate for yourself.
For additional information and resources, visit the Endometriosis Foundation of America at endofound.org.
About Jennifer Latchford
Jennifer Latchford is an Asbury Park–based writer with experience across health, real estate, technology, nonprofit and influencer communications. Her expertise spans media relations, brand strategy and crisis management. Known for her thoughtful, strategic approach, Latchford helps brands tell meaningful stories and connect with audiences in an evolving media landscape.